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NE Parkinson's Disease Registry

Nebraska State Parkinson's Disease Registry

Parkinson's disease (PD) occurs in Nebraskans and our northern plains neighbors about two times as high as in the rest of the country, and there is considerable evidence that our rural-based lifestyles play a role in our increased risk. 


The Registry is a list of names and addresses of Nebraskans who have been reported by the physician who diagnosed their PD and/or the pharmacist who provides their PD medications.  The list is maintained by the Nebraska Department of Health and Human Services (NEHHS) in Lincoln.  Names on this list are kept strictly confidential and are available only to approved researchers who fulfill the requirements of their institution's review boards and those of the NEHHS.  This Registry, the only one of its kind in the entire nation, provides the most efficient and accurate means for collecting information that makes possible the evaluation of patterns of patient care, the planning of resource allocation, and assisting efforts toward a cure for PD.

If you would like more information on the Nebraska State Parkinson's Disease Registry, you are welcome to contact Lisa Brovold in the department of Neurology at 402-449-4535 labrovo@creighton.edu or Carolyn Peterson, 402-280-4693 cpeterso@creighton.edu

 

Creighton University